During Volunteer Appreciation Month, the American Brain Tumor Association (ABTA) is proud to recognize Aisha Khalid, a dedicated volunteer Patient Advocate and Research Grant Reviewer whose lived experience as a brain tumor survivor is helping shape the future of research.
As a survivor of a neurocytoma, a rare benign brain tumor, Aisha’s journey began unexpectedly after a concussion led to diagnosis. Surgery, long-term recovery, and permanent disability changed the course of her life in profound ways. Today, she brings her personal experience into every research grant she reviews, ensuring the patient voice remains central to scientific progress. When evaluating proposals, she looks beyond scientific rigor alone and asks a critical question: how will this impact a patient’s life?
While strong science is essential, Aisha is especially drawn to research that prioritizes patient impact. This includes studies focused on improving quality of life, enabling earlier or more accurate diagnosis, minimizing long-term side effects, and addressing the ongoing needs of survivors. She also values when researchers clearly explain how their work could translate into real-world care. “Innovation matters, but so does ensuring that discoveries can truly reach and benefit patients,” says Aisha.
ABTA’s peer review process is similar to how federal grants are reviewed, bringing together panels of scientists and physicians with expertise in neuro-oncology to evaluate each proposal. Patient advocates add a critical and complementary perspective by representing the lived experience behind the diagnosis. Through thoughtful written reviews, Aisha highlights factors such as cognitive function, independence, and the ability to return to daily life, helping ensure that every proposal is considered not only for its scientific merit but also for its real-world impact on patients.
Aisha’s message to researchers is clear: a brain tumor diagnosis affects far more than the tumor itself. It impacts identity, relationships, independence, and a person’s future. Thinking beyond survival statistics to include quality of life, emotional well-being, and functional outcomes can make research more meaningful and impactful.
To learn more about ABTA Research Grants, check out the Research section of the ABTA’s website. If you’re interested in volunteering as a Research Grant Reviewer or other meaningful opportunities to make a difference, visit abta.org/get-involved/volunteer.
