Pediatric Caregiver Resources Center

When your child is diagnosed with a brain tumor, your life is instantly turned upside down. As a parent, your natural instinct is to protect your child, but a brain tumor diagnosis is something you can’t control.

Please know that you are not alone. Our resources and community of patients, survivors, and caregivers can help with information, insight, and support. The ABTA website can be your personal touchstone as you navigate the days, weeks, and years ahead.

Pediatric Brain Tumor Facts

Children are not smaller versions of adults. Their bodies and brains are still developing, they have different needs, and their tumors are different too.






After a Pediatric Brain Tumor Diagnosis

The process of discovering that your child has a brain tumor is overwhelming and emotional. We have detailed information on the process of diagnosing a brain tumor so that you can better understand what is happening.

What are the next steps?

Returning to School

During the diagnosis and treatment of a brain tumor, your child may ask, “When can I go back to school?” Returning to school after months of treatment can be a cause for celebration. It’s also a process that needs care, attention, and support by you as a parent, and also by the child’s teachers, school social worker or counselor, and principal. Although it’s important to return to school, it’s also critical to be aware of what your child may experience and ways you can help.

Learn More

You are your child’s best advocate

A study published by the National Center for Biotechnology Information found that less than 50 percent of recommendations from neuropsychological evaluations were implemented in the school setting . This underscores the importance of parents knowing their rights and advocating for their children’s interests.

  • As your child makes the transition back to school, consider planning regular meetings with your child’s teacher or counselor to see how things are going. Ask about behavior, signs of fatigue, excessive frustration, and depression.
  • Check in with your child frequently and help address his or her concerns.
  • Be aware of changes in your child’s physical, emotional, and cognitive abilities and be prepared to request updated accommodations at school.

For more information, download our Educating Children and Teenagers fact sheet.

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