Acoustic Neuroma Support Groups

These meetings are for those who have been diagnosed with acoustic neuroma (a rare, benign brain tumor affecting the 8th cranial nerve). Attendees can ask questions, explore treatment options, and discuss coping strategies with other patients and clinical experts.
The group meetings are free of charge. Patients, family members, caregivers, healthcare professionals and interested persons are welcome to attend..

Visit this webpage to find a support group near you.

Group facilitated by peers.

Page last updated: 2/26/26

Specialty Support Groups

Aftercare Support Group – Bonny Lally – (410) 660-1259 – [email protected]
Caregiver Support Group – Sara Wasserman – (928) 301-8761 – [email protected]
Facial Paralysis Support Group – Tara Paul – [email protected]
Headaches (Pre-Treatment) – Ken Posner – (248) 464-0808 – [email protected]
Headaches (Post-Treatment) – Agnes Garino – (314) 610-9259 – [email protected]
Musicians with AN – Stefanie Batson-Martin – (407)493-7095 – [email protected]
Newly Diagnosed / Pre-Treatment – Chad Nye – (407) 496 – 8357 – [email protected]
Regrowth Support Group – Miranda Sacharin – (925) 297 – 9435 – [email protected]
Young Adults Support Group – Emily Truell – (920) 229-5201 – [email protected]
                                                    Michelle Nemeth – (703) 772-7114 –  [email protected]

Support Groups by State

If there is not a group in your area and you would like to start one, contact us.

AZ – Phoenix
Leader: Tracy Denmark Schwimmer
602-561-1855
[email protected]

AZ – Tucson
Leader: Tricia Jennings
520-825-9845
[email protected]

Leader: Carol Franklin
520-490-5035
…

CA – Los Angeles
Leader: Leah Keith
[email protected]

Leader: Kimberly Ary
[email protected]

CA – Palo Alto
Leader: Christina Esfehani
650-575-6990
[email protected]

Co-Leader: Mark McLaren
925-838-8175

…
CA – Sacramento
Manager of Volunteer Programs
770-205-8211
[email protected]

CA – San Diego
Leader: Helen McHargue
760-728-0309
[email protected]
Leader: Margaret Briggs
619-500-6141
…

CA – San Francisco/Oakland
Leader: Carol Most Walker
415-889-3547
[email protected]

Co-Leader: Thomas Sattler
415-987-9489
…

CO – Denver
Leader: Ginnie Ferraro
303-469-6391
[email protected]

DC – Washington, DC
Leader: Allison Shaffer
301-279-9166
[email protected]

Co-Leader: Michelle Nemeth
703-772-7114

…
FL – Jacksonville
Leader: Dyanne Hughes
904-624-0940
[email protected]

GA – Atlanta
Leader: Meredith Daly
678-525-1941
[email protected]

IL – Chicago
Leader: Leah Jenks
708-954-7774
[email protected]

KY – Louisville
Leader: Kathy Gardner
502-593-9224
[email protected]

MI – Michigan
Rick May
734-812-8054
[email protected]
Meets in W. Bloomfield

MN – Minneapolis/St. Paul
Leader: Laura Ferenci
612-501-2248
[email protected]

Leader: Steven Blons
612-925-5926
…

MO – Columbia
Leader: Carol Gardner
573-690-3296
[email protected]

MO – St. Louis
Leader: Phyllis Trulock
314-822-3221
[email protected]

NC – North Carolina
Leader: Stewart Binder
919-624-3256
[email protected]

Leader: Lisa Fisher
412-996-2386…

NH – Lebanon
Shannon M. Bagley
[email protected]
603-650-8123

Manager of Volunteer Programs…

NJ – South
Leader: Iryna Mosendz
609-705-6623
[email protected]

NY – Albany-Mid Hudson
Leader: Tracey Collins
581-382-3283
[email protected]

NY – New York City
Leader: Miranda Warren Sacharin
925-297-9435
[email protected]

OH – Cincinnati/West Chester
Leader: Alice Wedding
513-315-2341
[email protected]

OH – Cleveland/NE Ohio
Leader: Sandy Hadgis
440-213-3577
[email protected]

OR-Portland
Leader: David Noyes
Phone 503-419-7418
Email: [email protected]

PA – Allentown
Leader: Emily Praeter
513-265-1350
[email protected]

PA – Philadelphia
Marya Camilleri
[email protected]

PA – Reading
Leader: Nancy Graffius
610-939-9114
[email protected]

SC – Columbia
Leader: Ricky Roberson
843-814-2027
[email protected]

SE New England
Leader: Tony DiBella
401-523-9467
[email protected]

TN – Nashville
Leader: Lauren Vaden
615-232-4929
[email protected]

TX – Dallas/Ft. Worth
Leader: Laura Spence
972-974-1516
[email protected]

Co-Leader: Linda Dorasami
817-244-0615
…

TX – Houston
Leader: Laurie Reid
713-503-2788
[email protected]

VA – Roanoke
Leader: Johnny Diaz
904-738-5063
[email protected]

WI – Milwaukee
Judy Jones
414-491-6249
[email protected]