The American Brain Tumor Association is proud to recognize Larry Berg as the recipient of the 2025 Juliana Schafer Spirit of Hope Award. This award honors individuals who have generously donated their time and talents to advance the ABTA mission through exceptional volunteer efforts. For more than a decade, Larry has been a tireless advocate for brain tumor patients, caregivers, and researchers—transforming personal tragedy into lasting impact.

Larry’s journey began in 2011 when his daughter Kaitlyn was diagnosed with a brain tumor at age 13. In the years that followed, Larry launched and expanded Michigan’s BT5K, built critical hospital and media partnerships, and helped raise over $1.7 million in support of brain tumor research and patient services. His leadership and outreach have touched more than 12,000 lives, creating a strong and supportive community for those impacted by a brain tumor diagnosis.

Even after Kaitlyn’s heartbreaking passing in early 2025 from a radiation-induced glioblastoma, Larry continues to honor her legacy through meaningful action. His family’s generous $175,000 contribution—funded through Kaitlyn’s estate and community efforts—will support four ABTA research grants in 2025. We are deeply grateful for Larry’s unwavering commitment, and we look forward to honoring him at the 2025 ABTA National Conference, September 12–14 in Chicago.