Newly Diagnosed Toolkit

Welcome To Your

Newly Diagnosed
Toolkit

We understand that a brain tumor diagnosis can be overwhelming for both you and your loved ones. This resource hub gives you the support and information you need to get started on your journey.

Getting Started on Your Brain Tumor Journey

These educational products are available to view or download as pdfs so you can access this information immediately. Many of these are included in your Newly Diagnosed Toolkit, but you can access them immediately and not have to wait for them to be delivered in the mail. The best way to view PDFs is with a PDF-specific reader. Many PDF readers, such as Adobe Acrobat, can be downloaded for free online. Click the icon to download.

About Brain Tumors (Primer)

A primer for patients and caregivers

Brain Tumors (for newly diagnosed)

A handbook for newly diagnosed

Caregiver Handbook

A handbook for caregivers

Brain Tumor Dictionary

A glossary of terms for patients and caregivers

Primary Brain Tumors Questions to Ask Your Doctor

Important questions to ask about diagnosis, treatment and care

Metastatic Brain Tumors Questions to Ask Your Doctor

Important questions to ask about diagnosis, treatment and care

Seizure First Aid Flyer

Quick reference flyer to help patients during seizures

Neuropsychiatric Symptoms

Overview of neuropsychiatric symptoms

Our Support Services are 100% free for patients and caregivers

CareLine

800-886-ABTA (2282) 8:30 AM-5:00 PM CST or [email protected]
- Information on treatment and care
- Finding brain tumor treatment centers
- Financial assistance resources
- Finding clinical trials

Support Groups

From diagnosis, surgery, and treatment side effects, to recovery and for some—recurrence—you may feel anxious and isolated. Support groups can improve your emotional well-being and quality of life. Virtual and in-person options.

Patient & Caregiver Mentor Support

Our Mentor Program offers patients and caregivers the opportunity to connect with someone who has gone through a similar brain tumor diagnosis, treatment, and care.

Financial Support

Being diagnosed with a brain tumor takes a toll physically, emotionally, and financially. Medical bills and related costs can quickly add up. We have a list of resources to help in addition to the ABTA Financial Assistance Program.

Webinars

The free educational webinar series is an excellent resource for brain tumor patients and caregivers to learn more about brain tumor types, treatments, well-being topics, and research updates from nationally recognized experts.

Brain Tumor Treatment Center

The ABTA Treatment Center Guide provides detailed information about a variety of treatment centers, including the number of patients treated annually, technologies and specialized procedures offered.

Connections Community

ABTA’s online support community, where brain tumor patients, survivors, and caregivers come togetherI. Information about malignant and non-malignant tumors, GBM, immunotherapy and more.

Patient Family Meetings

Each free, half-day program in this series focuses on a specific topic for brain tumor patients and caregivers, led by nationally recognized experts. Watch one or all. Similar to our Webinars but longer and more in-depth.

Newly Diagnosed Webpage

This page has specific information and resources for people who are newly diagnosed. Please check here for webinars, information, and more. This page is constantly being refreshed and will have the latest information.