Survivorship

Surviving a brain tumor isn't just about being alive. It's about quality of life, length of life, and all of the joys and struggles in between. Admittedly, there are challenges. Below is a collection of resources to help survivors and their families find a "new normal" in their lives. If you have a favorite resource that would be helpful to other survivors, please e-mail it to us at info@abta.org.

Welcome....
Ten year brain tumor survivor and award winning folk guitarist, David Bailey (www.davidmbailey.com), shares an inspiring message with survivors and their families. You'll need Javascript enabled, and version 8 of Flash Player installed to listen to this music. Click the left black arrow to begin.

Share Hope, David Bailey (7 minute, audio only)

Healthy Eating
Brain tumor survivors often ask, "What can I do to help fight this tumor?" Here are practical tips for transitioning toward healthier eating and providing the nutrients your body needs to fight disease. We also offer answers to your questions about healthier nutrition.

Managing Fatigue
Fatigue is a common effect following treatment for a brain tumor. This article explains fatigue, and makes suggestions for taking control of this effect.

Memory Therapy
Our memory helps us understand a task, organize required steps into an appropriate order, and deal with change as the task unfolds. Learn what memory therapy is, and how to find a program near you. 

Communicating with Your Healthcare Team
If a topic causes you concern, it deserves to be addressed. This article offers suggestions for effectively expressing your questions and concerns. 

Online Support
There are many forms of support available to both survivors and those who care about them. Explore this list of online options for communicating with others in the brain tumor community.

Occupational Therapy
Occupational therapists view life holistically. They focus on the whole person; the physical, social, emotional, and psychological effects of illness and injury. Read about the ways occupational therapists creatively problem solve to help you perform the activities that are important to you.

Physical Therapy
Physical therapy is a branch of rehabilitative medicine offering examination and treatment of musculoskeletal and neuromuscular problems. Learn how physical therapists can work with your movement challenges, as well as teach you to exercise safely to reduce stress, relieve pain, and prevent disability.

Spirituality
Many survivors, and their families, find comfort and strength in religion. But not all beliefs flow from organized systems. This article offers resources for exploring the role of spirituality in healthcare.

Working with a Brain Tumor
When diagnosed with a brain tumor, one of the common questions many have is, "Can and will I be able to work?" Although the ability to return to work depends on the needs and situation of the specific individual, many surviors return to, and/or stay at, work. This portal in the ABTA web site provides suggestions for making the employment experience positive for all.

Also, visit the Care & Support section of our web site for information about support groups, counseling resources, and how to find a neuro-psychologist.

December, 2009