Tr GBM Grade IV Survival now enterning 9 th year
Dear Friends ,
I am Mr Tapas Raha ,age now 66 ,living in Calcutta ,India ,want to share about my GBM Grade IV Cancar Left Parietal .
I was diagnosed with GBM(Glioblastoma Brain Multiple ￼￼Tumor Grade IV ,highly Malignant Cancar Survivors) in 2008 4/ 5th midnight February , after I had Excruciating Pain in the Whole Head at 11.40 pm on 4 th February , while I was chatting with my family at home .
MRI of 5 th February 2008 at Kolkotta/ Madras size 5.0 x 4.0 x 3.3 cm
Prior to surgery when Tumor was detected in Kolkotta on 5 th February 2008 MRI report Apollo Gleneagles Hospital Kolkotta/Madras .
I was 56/57 years old .Now 66 + still surviving with my GBM IV ,I.E.7 years 6 months had ONE Surgery so far ,done by Renowned SURGEON DR SIDDHARTA GHOSH APOLLO GLENEAGLES HOSPITAL
After my admission in Apollo Hospital on 2008 ,Salt Lake on 5 th February ,the team of Dr's found out had I had Large Tumor in the Head ( Left Parietal )from CT Scan & MRI .
My family decided to fly me to Madras .After reaching Madras & getting admitted under Dr S Ghosh ,he study my case & made my undergo several tests etc ,but having no PET-CT in Madras ,I was flown to Hyderabad Apollo Hospital where they had latest PET CT Scan .Same day ,after collecting my reports ,I was flown back to Madras with to & from by paramedic Escort .
Dr Ghosh done CT guided stereo tactic Biopsy done on 9/2/2008
Navigation guided Left Parietal ceaniotomy & gross total excision of tumor done on 14/2/2008 .
Finding 4 cm in Parietal cortex tumor grayish white in Color & moderately vascular .
Dr Ghosh studied my reports ,then decided to perform my BRAIN SURGURY , with team of Dr's on 14 th February 2008 which lasted over 5 hrs + .
Thereafter ,Dr prescribed me with various types medicine/injection eg. 45 Tabs per day which I continued for nearly 3 years + ,slowly reduced to 2 Anti convulsion drug ,besides which includes this schedule Medicine Pan 40,
Epic 100 Mg X Thrice Daily ,
Elton 100 Mg ,
Levi pil 1g X Twice Daily,
Laming DT 100 mg , Eslizen 400 X 3 Tab Per Day ,
Amaryl 2 Mg .
I underwent Radition in Madras Apollo under Dr K S Sekhar Sr .Consultant Radiation Oncology on 12 April 2008 .
I had to take ONE Temodal Capsule per day before Radition for 20 days .
My Report states that :-
Glioblastoma Multi forme -Left Temporo Parietal Region -Post Op
On Examination :- General Condition - Fair ,CVS :S 1 S 2 - Normal ,RS :Clear ,Abdomen :- Soft , NAD.
L/E :- Craniotomy scar healthy , slurring of Speech + ,right hemiparesis +
Course in Hospital :- After GTC immobilisation ,treatment planning CT brain was taken ,target volume drawn and planning was done ,patient was started on Stereo tactic Radiotherapy on Linear Accelerator ,using 6 MV photona total dose of 60 Gy in fractions was given to the lesion by SRT technique from 29.02.2008 to 12.04.2008 .Patient tolerated the treatment well .
Advice :- To review with Dr Siddhartha Ghosh (Consultant Neuro Surgeon ) for further management .
To review with Dr K S Sekhar ( Snr Consultant Radiation Oncologist ) after 2 months with prior appointment .
Dr K S Sekhar
Radiation Oncologist. Dt 12/04/2008
In 2011 May ,again my Dr suggested to undergo SRT Radition . Before I underwent Radition ,had to take ONE Caps Temodal before SRT ,Dt 25/5/2011 completion Dt 4/6/2011
Under Dr S Mukherjee/Dr Akhter Jawade ) SRT (Diagnosis ;- Recurrent Tumor Left Parietal Lobe ( Glioblastoma Multiforme)Surgury 2008 >Post Surgery Radition (SRT 60 Gy IN 30 Fractions )Machine ,Novalis Tx ,Energy 6MV Photon (SRT ) Dose 30 Gy IN Fractions Immobilisation by SRS (Framless Carnial Mask )Daily Verifation by Exactrac ,Comments :- Tolerated Radiation Well ,Adv Skin Care etc , (Temodal ) Caps for Radition 3 caps per day for 5 days repeat in 3rd week cycle for 21 cycle .
Advice dt 15/02/2008 in CHENNAI :-
Tab Eptoin 100 mg 1 - 1- 2 to be continued
Tab Encorate 100 mg 1 tab three times a day to be continued
Tab Frisium 10 mg 1 tab at bedtime to be continued
Tab Decdak 2mg 1 tab four times a day to be continued
Tab A to Z 1 tab once a day x 1 month
Tab :Lamitor DT 100 mg. 1 tab ,two times a day to be continued
Tab: Pan 40 mg , 1 tab ,two times a day to be continued
Tab : Sucralfate 1gm. 4 times a day to be continued
Tab : Benalgis 75 mg 1 tab ,once a day x month
Tab : Temodal 100 mg , 1 once a day before radiation .Tablet to be taken non-radiation day also .
Tab :Emeset 8 mg. 1 tab 1/2 an hour before Tab Temodol to be continued
Tab : Atorva 10. 1 tab at bedtime to be continued
Tab : Losar 50 mg 1 tab .at bedtime to bw continued
Tab : Alprax 0.5. 1 tab .at bedtime to be continued
Tab : Lasilactone 50 mg. 1 mg .Once a day x 1 month
Tab :Gluconorm SR. 500 mg. 1 tab ,two times a day to be continued
Tab : Inj .Human Insulin R 8 units three times a day .
To come for review as advised with prior appointment .
Medicine priscribed by Dr S Ghose (Senior Consultant Neurosurgeon ) in 2008 after Surgery .
I have been declared 90% disabled by the Medical Board by Govt of India ,Smt Mita Banerjee I.A.S who issued my certificate Identity Card & Pass Book 925327 dt 30/05/2012 valid 30/05/12 90% Degree of Disability O.P.H Govt of W/Bengal/ deptt of Women & Child Development & Social Welfare .
In 2011 ,my Dr Saibal Mukherjee of Apollo Hospital ,Calcutta ,one day told me that they have meeting regarding Difficult cases & I am glaring example patients suffering with GBM Grade IV ,since 2008 February till now ,Age now 62 + (had in 2008 February 5th was Age 57 yrs )
Sir ,as per Dr Lt .Gen .Dr Saibal Mukherjee (Retd) MD (Radiology)MD,(Radiotherapy)Director of Oncology Service ,& Head of. Apollo Gleneagles Cancer Hospital ,Kolkatadrstold_m@apollohospitals.com. Mob 09804000402. Work 03323202122.
When my family enquired how he is telling this ,he told to look up in internet where I will find the details of GBM Grade IV Survivors of Left Parietal .My age as present 62 + 3 months .
Dr Madhuchanda Kar ,Medi Onco Consultant ,MD ,Phd mobile 9830155915 of. ,was recommended by Dr Siddhartha Ghosh to look after my developments of my oncology problems .
1 A ,Mandivelle Gardens ,Kolkata-700019 ,INDIA
In 2013 February ,I have been recently interviewed by DD (Govt of India TV channel )since my rearest of rarest case of survival over 5 years will be a lesson for benifit of other suffering patients from GBM ( Glioblastoma Brain Multiforme￼￼Tumor Grade IV ,highly Malignant Cancar Survivors) .
Please watch in U -Tube under Brain Cancar Survivor Tapas Raha which has been posted by my friend on 12 Th March 2013 .
My advice to my fellow patients will be not to give up hope ,pray to GOD almighty to live as long as possible ,strong will power ,strong determination to fight CANCAR .
My latest MRI with Contrast Spetroscopy dt 2 nd July 2013 done at Tata Hospital ,Rajarhat ,Kolkotta states that my Tumor Size has shrunk in Size & I am feeling much better with my phyiotherapy exercise & able to grasp items with my right hand ,lift water bottle 1.5 kg Weight ,throw rubber & plastic ball ,slowly able to fold my fingers.
I am very happy .
Seeing my post in CancarCompass under " Inspire "ABTA website ,several patients & there families contacted me & I am happy to guide them to my Homeopathy Dr Pritip Banerji of Kolkotta who is recommending medicine depending nature of Cancar or GBM where located etc .
If anyone wants to have all my reports ,I am ready to share with him/her or Dr's .
MRI dt 20 th February 2012 at Apollo Gariahat Dr Anup Bhargava size 4.5 x 4.4 x 4.8 cm
MRI dt 26 th May 2012 at Apollo Gariahat Dr A Bhargava size 4.4 x 3.4 x 3.6 cm
My MRI findings in Tata Hospital ,Rajarhat Kolkotta are as follows :-
Tata MRI Tumor Test Order S0/12/140864 DT.4/9/2012 report Size 4.9x3.88x3.80 cms .
Next MRI dt 16/01/2013 ref Tata Hospital ref MR No MR/12/005243 Test order SO/13/149410 Tumor size next 4.6x4x3 cms
Latest MRI Tumor MR/12/005443 dt 6/7/2013 size 4x3x2.7 cms
My Latest MRI Result dated 14 February 2014 in Tata Medical Centre Hospital ,Rajarhat Kolkata show my Tumor Size as
3 x 2.8 x 2.7 cms reference MR No. MR/12/005343. Test Order No SD/14/041844 report
My next MRI done Tata Medical hospital in Rajarhat done on 16 th February 2015 shows size 3 x 2.8 x 2.50 .this means reduction by .20 cms
Institute Of Cytology and Perventive Oncology ( ICMR )Dpt of Health Research ,MOH & Family Welfare ,Govt of India .
In Feb 2015 MRI & December 2015 MRI show same size .
I am very happy to state that Homeopathy Medicine can cure or give extra life etc .
I went UK & USA & gave interview with VOA ,Washington & BBC last week came to my house took Interview etc
If you type my name in Google ,then my whole history can be read .