Lessons from a 15-Month-Old Brain Tumor Patient

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December 2, 2016

Little did I know that our daughter, Lucy, would teach me so much about how to live. My little girl, just 4 months old at diagnosis, lives every day with a debilitating brain tumor and an enormous smile.

My husband Tim and I became concerned in December of 2015 when we saw Lucy having random, abnormal eye movements. An MRI showed a mass in Lucy's brain. On January 11, 2016, Lucy had brain surgery to biopsy the tumor, an optic nerve glioma, which is benign and generally slow growing. However, a follow up MRI two months later showed that the tumor was growing faster than expected. Lucy started a year-long chemotherapy treatment plan in March 2016.

When we learned of Lucy's tumor we were devastated, scared and angry. Our teacher in this process was none other than our Lucy. She is such an inspiration to us, always wearing a big smile despite the difficult medical treatments and procedures she goes through.

Based on our experience, Tim and I started looking into organizations we could support. The American Brain Tumor Association’s (ABTA) BT5K Chicago 2016 stood out to us because we could make a difference by helping so many people affected by brain tumors. We started team Super Lucy to rally support for this amazing cause.

We continue to give to the ABTA. Team Super Lucy will be back in 2017 to raise money to help fund critical research and to provide educational resources that are helping children like Lucy teach us how to live.