CHICAGO, IL - Individuals and their families living with a brain tumor diagnosis will hear leading brain tumor experts present the latest brain tumor quality of life strategies, research findings and treatment trends when they convene in the Chicago area on Friday and Saturday, July 29-30, 2011, for the American Brain Tumor Association (ABTA) national Patient-Family Connections Meeting and Retreat.
In addition to workshops on managing daily life issues with a brain tumor, and medical updates tailored for patients, their families and the media, Victoria Reggie Kennedy will speak about her life with Senator Edward M. Kennedy and the brain tumor diagnosis that irrevocably changed their lives.
“We are confident that this rare opportunity for connections within the community of all those impacted by a brain tumor diagnosis will be a memorable and valuable experience,” said American Brain Tumor Association Executive Director Elizabeth Wilson. “In addition, this extraordinary weekend provides a unique and wonderful opportunity for individuals in similar circumstances to share their experiences.”
Highlights of the two-day program:
- Susan Chang, MD, director of neuro-oncology at the University of California, San Francisco will present American Brain Tumor Association-supported research, published earlier this year in the Journal of Neuro-oncology, on unmet patient and caregiver needs and how the results have changed her practice.
- Kirstin Smith, Division of Fertility Preservation at Northwestern Memorial Hospital, will discuss oncofertility.
- Monica Bryant, Esq., Cancer Legal Resource Center, will present financial options for coping with a brain tumor diagnosis.
- Gina Baldacci, MSW, Children’s Memorial Hospital, will discuss helping your child’s teachers and other school staff understand how to include a child with a brain tumor in everyday school activities.
- Jeffrey Bruce, MD, director of the Bartoli Brain Tumor Research Laboratory, will outline promising new brain tumor treatment trends, including new advances in drug delivery, novel breakthroughs in cancer vaccines and molecular biology that are “pushing the research envelope for brain tumors”.
- A Simulated Tumor Board, featuring brain tumor specialists from the Cleveland Clinic, MD Anderson Cancer Center, the University of Chicago, the University of California San Francisco and the University of Kentucky, who will review actual brain tumor cases and answer questions.
- Other leaders will present workshops on palliative care, rehabilitation, caregiver stress management, adolescents and young adult issues, and other quality of life issues
Attendees can also enjoy an onsite Relaxation Café, hand massages, music, aromatherapy, a journaling workshop, and the wide open space and amenities at the Lincolnshire Marriott.
The American Brain Tumor Association annual meeting is sponsored by Cleveland Clinic, Genentech, the MD Anderson Proton Therapy Center, the Mayo Clinic, NorthShore University HealthSystem, novocure, The Northwestern Brain Tumor Institute, Cyberknife Center of Chicago, The University of Chicago Medical Center, AdeptBio and Diplomat Specialty Pharmacy.
For more information on the American Brain Tumor Association’s research program and patient services, visit http://www.abta.org.