ABTA, Mayo Clinic Create Patient Program

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August 11, 2011 - Rochester, Minnesota

The American Brain Tumor Association (ABTA) and Mayo Clinic are
establishing a program to provide educational support for patients coping with the diagnosis and treatment
of brain tumors. The program includes one-on-one coaching for patients and their families.
Jan Buckner, M.D., professor of oncology at Mayo Clinic, announced the program at the American
Brain Tumor Association Annual Meeting Dinner in Chicago on July 29.


“I am thrilled to announce this effort which has resulted in a new dedicated nurse educator and
enhanced patient education materials exclusively for brain tumor patients and their families at Mayo
Clinic,” Dr. Buckner says. “This milestone reflects the unwavering commitment of both organizations to
improve outcomes for patients with brain tumors.”


“The American Brain Tumor Association has always admired Mayo Clinic’s philosophy that put
the needs of the patient first,” says ABTA Executive Director Elizabeth M. Wilson. “The gift to support
these enhanced services reflects a shared commitment to providing optimal education and support to brain
tumor patients and their families facing this diagnosis.”


The nurse educator will provide individual coaching and education to patients and their families.
Patient education materials, including the ABTA “Brain Tumor Primer,” publications on individual tumor
types and treatments, and other ABTA resources, will be available at the Stephen and Barbara Slaggie
Family Cancer Education Center, on the main floor of the Gonda Building at Mayo Clinic. The ABTA’s
website and electronic resources and its patient support phone line CareLine will be available at easily
accessible computer workstations and phones in the Cancer Education Center and patient care areas in the
Gonda building in Rochester.


The program includes an annual assessment of the nurse educator and enhanced training on patient
learning needs, health literacy, cultural barriers, age-specific approaches to education, learning styles and
teaching strategies. The feedback will also help guide the ABTA as it enhances its patient education
materials and services, Wilson says.


Support for the joint effort is being provided to ABTA by proceeds from the annual Humor to Fight
the Tumor gala in Minneapolis. The event is organized by brain tumor survivor Joelle Syverson and a
committed group of individuals and families affected by a brain tumor diagnosis.


“We are extremely grateful to our dedicated event organizers and annual supporters of the Humor
to Fight the Tumor event, and are very pleased to be able to ensure that dollars raised through their efforts
are benefiting local brain tumor patient education and support needs,” Wilson says. “It is through their
ongoing efforts that this program and these enhanced services are possible.”


ABOUT THE AMERICAN BRAIN TUMOR ASSOCIATION

Headquartered in Chicago, the American Brain Tumor Association was the first national organization committed to
funding brain tumor research and providing compassionate outreach to patients and caregivers coping with a brain
tumor diagnosis. For nearly 40 years, the association has funded researchers working toward breakthroughs in brain
tumor diagnosis and treatment. Through its dedicated team of licensed healthcare professionals, the ABTA provides
brain tumor information and education for patients, families and healthcare professionals. The American Brain
Tumor Association is a federally registered 501(c)3 charity that consistently earns high marks from the nation’s
charity ranking organizations. For more information, visit www.abta.org.


ABOUT MAYO CLINIC

Mayo Clinic is a nonprofit worldwide leader in medical care, research and education for people from all walks of life.
For more information visit http://www.mayoclinic.com and www.mayoclinic.org/news.

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