Brain tumor community’s passion for increased awareness underscores need to reach more people locally with education and support.
The American Brain Tumor Association (ABTA) today unveiled branding of its new volunteer network “ABTA CommYOUnity™” during its annual patient and family conference in Chicago.
“This is a pivotal time for the brain tumor community as we – the first and now only national organization providing patient and caregiver support services and funding brain tumor research – extend our reach by engaging volunteers who are passionate about brain tumor awareness and getting our materials and services into the hands of those who need them most,” said Elizabeth M. Wilson, MNA, president and CEO, American Brain Tumor Association. “The volunteer network branding reflects the coming together of the brain tumor community as one – locally, regionally and nationally – while emphasizing the singular contributions of every individual and group involved.”
The new brand identity was first unveiled at a special ABTA volunteer kick-off event that included nearly 30 ABTA constituents representing a diverse group by tumor type, age, gender and geographic location. Most had participated in a focus group conducted by the ABTA in their hometown last year to offer their input on the needs of the brain tumor patient and caregiver in their community.
The kick-off event demonstrated for the group how the ABTA CommYOUnity™ will serve as a framework for increasing awareness, educating, fundraising, and engaging and connecting volunteers and health care professionals at the grassroots level. The program was then formally announced and introduced at the ABTA conference attended by more than 200 patients, caregivers and nationally-recognized brain tumor medical and scientific leaders.
According to Wilson, “The ABTA CommYOUnity™ sub-brand continues the ABTA’s transformation into a more dynamic organization with a strong local presence able to tap into the energy and passion of brain tumor patients, families and caregivers at the grassroots level.”
The ABTA CommYOUnity™ sub-brand serves as an umbrella for the volunteer network’s initial four core focus areas:
- Amp Up: Information, Awareness and Advocacy
- Link Up: Peer-to-Peer Support
- Raise Up: Fundraising
- Step Up: Educating and Facilitating
“Too often we hear from brain tumor patients and families that they wished they would have had the ABTA’s materials sooner because having this information may have changed the decisions that they made,” said Wilson. “Our hope is that the ABTA CommYOUnity™ will expand our reach and influence so that when someone learns ‘it’s a brain tumor,’ they know there is somewhere they can turn to for the trusted information, support and resources we know they so desperately need.”
The volunteer leaders who participated in the national volunteer network kick-off were selected from a pool of candidates who attended focus groups or who had expressed interest in learning more about ABTA volunteer opportunities. Participants will be attending the ABTA’s 2104 Patient and Family Conference taking place the same weekend. Travel expenses for volunteers to the event are being underwritten through generous grants from an anonymous foundation and Genentech.
To learn more and view the ABTA CommYOUnity™ video, go to http://www.abta.org/commYOUnity.
ABOUT THE AMERICAN BRAIN TUMOR ASSOCIATION
Founded in 1973, the American Brain Tumor Association was first and is now the only national organization committed to funding brain tumor research and providing support and education programs for all tumor types and all age groups. For more information, visit http://www.abta.org or call 800-886-ABTA (2282).