A brain tumor diagnosis is not only life-changing for patients, but for those closest to them. The sudden onset of symptoms, their often rapid progression, and the effects a brain tumor has on a patient’s behavioral and cognitive functions can cause anxiety, frustration, fear and uncertainty for both the patient and family. The American Brain Tumor Association’s 2013 Patient & Family Conference, Friday, July 26 and Saturday, July 27 in Chicago, focuses on the short and long-term needs of the patient and caregiver. The conference offers participants the opportunity to explore patient-centric, holistic approaches to brain tumor research, treatment, management and survivorship.
“With scientific breakthroughs in personalized medicine and targeted therapies resulting in brain tumor patients living longer, there is a correlative need for patients and families to understand and have access to an expanded offering of support and rehabilitative services not traditionally included in brain tumor medical regimens,” said Elizabeth Wilson, president and CEO of the ABTA. “This shift toward integration of restorative care across the spectrum of health and medical disciplines is driving greater engagement of both the patient and the family in discussions of treatment options and wellness therapies. The conference speakers, topics, sessions and demonstrations reflect the emergence of these trends and their potential to improve and extend lives.”
The conference includes a nationally recognized panel of brain tumor researchers who will address the evolving role of patients and caregivers in the design of clinical research and recent findings from ABTA supported-studies. Additional sessions focus on holistic approaches to patient-centered health care and personalized medicine – an increasingly important topic as researchers start to identify what treatments work on certain patients and why. It will also include tips on talking with your health care team, being your own best advocate, improving patient and family quality of life during this journey, returning to work after diagnosis, nutritional support through diagnosis and treatment, and survivorship strategies for patients and caregivers. Tools for managing patient and caregiver stress, fatigue and seizures will also be presented.
Conference presenters include medical professionals and other allied health care professionals from leading institutions, including Cleveland Clinic, Duke University, Emory University, Mayo Clinic, MD Anderson Cancer Center, The Ohio State University and Roswell Park Cancer Center. A full list of topics and presenters, who will be available for Q&A sessions throughout the weekend, can be found at www.braintumorconference.org.
The ABTA is recognizing its 40th anniversary in conjunction with the conference. "An Evening of Love and Laughter" at 7 p.m. on Fri., July 26 includes a reception, dinner, leadership recognition program, and performance featuring the Second City Touring Company.
The 2013 American Brain Tumor Association Patient and Family Conference is being held at the Marriott Renaissance O’Hare Hotel and Suites, 8500 W. Bryn Mawr Ave. in Chicago. To register, visit www.braintumorconference.org or call 800-886-ABTA (2282).
Sponsors for the 2013 Patient and Family Conference include Genentech, Inc., Northwest Biotherapeutics, The University of Chicago Medical Center, Alexian Brothers Neuroscience Institute, Cleveland Clinic Brain Tumor and Neuro-Oncology Center, NorthShore University HealthSystem, Novocure Inc., Procure Proton Therapy Center, The Northwestern Brain Tumor Institute and The Ohio State University.
ABOUT THE AMERICAN BRAIN TUMOR ASSOCIATION
Founded in 1973, the American Brain Tumor Association was first and is now the only national organization committed to funding brain tumor research and providing support and education programs for all tumor types and all age groups. For more information, visit www.abta.org.